Tag Archives: Craniosacral therapy

March 26, 2009 · 1:58 am

The Medical System Gave Up On Me

In 1995 I woke up from routine heart valve surgery with the left side of my body paralyzed from a stroke caused by the surgery itself: A tiny piece of tissue had broken away from the valve, traveled through blood vessels and lodged in my brain, blocking the flow of blood with its essential supply of oxygen to the neurons that controlled movement on my left side. I was 43 years old, married, with two young children.

If I had obediently followed the prescribed role of stroke patient in the world of conventional medicine, I would be an invalid in a wheelchair today. Instead, I am back at work as a medical journalist, paying taxes instead of collecting social security.

I recovered because “adapting” to my disability — which is what the insurance company doctor (who had never met me) told me to do after two months of occupational and physical therapy — was not an acceptable option for me. I didn’t want to buy shoes with Velcro, buttonhole fasteners or devices to hold a tomato steady so I could slice it. I didn’t want to walk with a cane or use a wheelchair in the airport. And I certainly didn’t want to spend valuable recovery time learning to use adaptive devices.

During my recovery, the health providers whom I found most helpful were those who recognized the devastation and despair that I felt as the result of this physical calamity. They saw me not just as a patient, but also as a wife, mother, writer and even amateur musician. In their understanding I found the encouragement, strength and hope that I needed to fight back to recovery.

The doctors I found least helpful were those who saw me not as a whole person, but rather as a “stroke patient:” These included the neurologists who shrugged and said “wait and see” when I told them that they must be wrong: I needed my left arm and I needed to be able to walk; and the heart surgeon who breezed into my hospital room just long enough to say, “Sorry you stroked, but heart-wise you’re fine.”

I quickly learned that while the advances of modern surgery can save your life, the conventional medical system — along with the insurers who pay for it — is not set up for full recovery.  The goal of the system was to get me out of the hospital or rehabilitation facility and send me home. What happened after that was up to me. The insurance company doctor (the one who never met me) told me that I had “plateaued,” which meant that while I had made progress in physical and occupational therapy, there would probably be no further improvement. I was at an impasse and additional intervention would be counterproductive (not to mention expensive).

As a patient, it feels as if the health insurers and many doctors want us to accept and “adapt” to our disabilities — whether we are recovering from a heart attack or stroke, suffering from chronic illness or pain or trying to manage the difficulties of growing older.  It is easier to prescribe pills and adaptive devices than to help us take responsibility for our bodies and our health.

I chose to fight my way back to recovery, and this is a tough thing to do for those of us who are accustomed to seeing our doctors as omniscient beings who control our health.  I learned about methods of healing outside of mainstream conventional medicine,including Traditional Chinese Medicine, chich has used acupuncture for thousands of years to treat stroke patients . Yoga, from the equally ancient Indian Ayurvedic system of medicine, gave me strength, balance and peace of mind. The Alexander Technique — a powerful system of movement education — taught me to use my body with less effort and reduced pain. Pilates exercise coaxed my weakened muscles back to work and craniosacral therapy restored my body’s natural rhythms.

I was fortunate: I had the will, the family support, the research skills and the financial means to pursue unconventional healing methods. Fighting the system is much harder for those who don’t have the money, the knowledge of alternative therapies or the emotional strength to keep up the lonely struggle for recovery.  Too often, such people live with pain, disability and despair.

Doctors must understand what illness means in the lives of their patients. They must use their positions, their authority and their words wisely. They have the power to heal, but they also have the potential to destroy hope and, along with it, the chance to recover.

11 Comments

Filed under acupuncture, Alexander Technique, chronic illness, Chronic Pain, Doctors, Stories of Hope, stroke, Traditional Chinese Medicine

Tagged as , , , , , , , , , , ,

July 17, 2008 · 4:37 pm

Healing Arts for Marfan and Chronic Pain

I recently helped to organize a Healing Arts workshop for the National Marfan Foundation annual meeting, which was held in Boson this year. More than 30 participants heard and asked questions of a panel of complementary/alternative practitioners who discussed managing the symptoms of Marfan syndrome—particularly chronic joint pain—with Tai chi, the Alexander Technique, acupuncture, Traditional Chinese Medicine (TCM), nutrition, and craniosacral therapy. Combining alternative treatments with conventional care is called “integrative medicine,” and putting together your own personal healing combination is an excellent way to take responsibility for your health. These healing modalities have applications for anyone suffering from chronic pain.

The workshop began with Tai chi and Alexander teacher Jamee Culbertson leading us in the opening movements and breathwork of a Tai chi form that is thousands of years old. Research has found that these ancient, graceful, meditative movements improve balance and reduce falls. As we breathed deeply and moved slowly in unison, the room seemed to transform into a kind of “sacred space,” as the group united with a shared purpose and energy. With two volunteers, Jamee then demonstrated how the Alexander Technique reduces pain and eases body movement through simple awareness of habitual actions that may be restricting activities. Both Tai chi and the Alexander Technique are gentle, non-invasive practices, and do not stress joints or ligaments.

Eurydice Hirsey, a trained chiropractor and craniosacral therapist, then talked about the use of craniosacral therapy to ease pain and improve movement by enhancing the circulation of cerebrospinal fluid. This is done through gentle touches on the head and sacrum, following the body’s own natural rhythms and movements, without force or pressure. While chiroporactic may not be indicated for most people with Marfan syndrome, the light touch of craniosacral therapy can ease tight muscles and reduce pain, even in those who have had spinal fusions, by focusing on other areas of the body where movement is possible.

Acupuncturist and researcher Stephen Cina shared his orthopedic investigations into the nature of connective tissue and its possible relationship to the meridians (energy pathways) used in Traditional Chinese Medicine. A practitioner either inserts tiny needles into “points” on the skin that correspond to the energy meridians (the needles are usually painless), or applies pressure with the hands (acupressure) on these same spots, in order to reduce pain. And naturopathic intern Amanda Daeges–who has Marfan syndrome, talked about maintaining integrity of connective tissue through what we eat and drink: specifically whole foods and whole grains that include nutrients and trace minerals. She also stressed the importance of drinking enough water. (Divide your body weight in half to find out how many ounces of water you should drink each day.)

All of these complementary modalities (and many more) are described in detail here, has well as profiles of practitioners and personal experience stories.

VERY important: Before you try any complementary/alternative practices, always check with your doctor.

6 Comments

Filed under acupuncture, Alexander Technique, Chronic Pain, Health, Marfan Syndrome, Tai Chi, Traditional Chinese Medicine

Tagged as , , , , , , , , , ,

November 4, 2007 · 7:56 pm

Restoring the Rhythm of the Body

If your health problems include chronic pain in your joints or back, headaches, or ear infections, you might benefit from a craniosacral therapy — after consultation with your doctor, of course. During a session of craniosacral therapy, you lie on your back, fully clothed, on a cushioned table. As the practitioner places her hands under your back on the connection between your head and neck, there is no sensation of “forcing” a movement. “I try to detect and focus on the deepest reservoir of the body, below the ‘radar’ of the conscious mind and even of the muscle,” says Dr. Eurydice Hirsey in Own Your Health—Pain: back pain, arthritis, migraines, joint pain and more, by Adam Perlman, MD, MPH. “I often just follow the body’s own impulse, gently helping it to undo the resistance in its own way, without pushing on the muscles or joints,” says Dr. Hirsey, a chiropractor who is also trained in craniosacral therapy. “This is how craniosacral work differs from chiropractic or even massage, where the practitioner might force or create a change in the body. It is the patient’s own response to the practitioner’s gentle touch that provides the release.”

When the muscle resistance does finally relax, the sensation is one of deep release from a tension you might not have been aware of. “For some people this can be an enormous, sometimes volcanic release,” said Dr. Hirsey. “They may cry, laugh or feel anger, often depending on whether the physical restriction in the body came from an emotional trauma.”

Craniosacral therapy, which can be performed by other practitioners, such as chiropractors, massage therapists, nurses and physical therapists, grew out of the system of osteopathy and treats the central nervous system and its relationship to the spinal cord in a similar way. Practitioners say that craniosacral “rhythm” within the body comes from the regular pulsing of the liquid — called cerebrospinal fluid — that bathes, nourishes and protects the spinal cord. It is through the regular pulses of the cerebrospinal fluid that the brain transmits nerve messages to keep the body alive and functioning.

Blockages or restrictions in the craniosacral fluid can result from tension in the muscles or “fascia,” the tissue just under the skin that overlies muscle and some organs, like a kind of inner “sleeve,” says Dr. Hirsey. “As I place my hands on the spine and head of my patient, I can often feel enormous resistance to the flow of cerebrospinal fluid, caused by blockages in the tissue,” she explains. “Any injury or trauma that alters or minimizes the flow of this fluid can cause pain and have a negative effect on our well-being and health.”

No matter who the practitioner is, the most important component in effective treatment is that the practitioner take into account the condition of the entire body, and that the technique is never used to replace necessary conventional treatment.

What’s the Evidence?
No controlled trials of craniosacral therapy seem to exist, according to one author, Dr. Edzard Ernst, who surveyed the literature, pointing out that Dr. Upledger himself, an osteopathic physician who developed the technique, does not cite them in his own writing. “Even though small movements between cranial bones are possible, there is no good evidence to suggest that restrictions of these movements have any health related relevance,” writes Ernst. -Ernst, Edzard, ed. The Desktop Guide to Complementary and Alternative Medicine: An evidence-based approach. Harcourt Publishers Limited 2001. P. 48.

However, practitioners, patients and parents claim that the technique is beneficial for problems such as birth trauma, chronic pain, cerebral dysfunction, cerebral palsy, colic, depression, dyslexia, ear infections, headaches, learning disabilities, Méniere’s disease, musculoskeletal problems, migraine, sinusitis and stroke. Young children are believed to respond particularly well. Personally, I have found regular craniosacral treatments helpful in dealing with the chronic musculoskeletal pain of Marfan Syndrome.

2 Comments

Filed under children's health, Chronic Pain, cold shower health benefits, ear infections, Headache, Healing, Health, Marfan Syndrome

Tagged as , , , , , , , , , , ,