Category Archives: chronic illness

Are You Ready for Your Closeup? When health interferes with work

The good news about advances in the treatment of chronic illness and pain is that many of us are now living—and working— well into midlife and beyond. But this good news may be tempered with new challenges.  For some, the body’s responses to long-term wear and tear might create obstacles to going to work every day. Such obstacles might include problems with mobility or discomfort with sitting at a computer for long periods. It may even be difficult to find professional—and fashionable! shoes that we can walk comfortably in.

All the World’s a Stage

When we leave home in the morning to go to work, we are entering the world “stage” to perform as employees, says Martin R. Anderson, certified Trager® practitioner and former actor. “The more that we have prepared for our performance, the better we will be.” The gentle Trager Approach of mind/body integration and movement education helps free tight bodies for efficient and effortless function.

“As with any performance, we need ‘rehearsal time,’ says Martin, particularly when dealing with chronic musculoskeletal condition and pain.” Martin suggests incorporating movements such as as stretching, yoga, or tai chi—into your morning routine before leaving for work. This increases circulation of blood and fluids, reducing joint pain. “Focus fully on your bodily sensations, without distraction from radio or TV,” he cautions. “This can be a form of self-hypnosis, reminding yourself to be at ease during the day.” My addition: Try a ten-second cold shower burst to get some instant energy!

When You Need to Make a Change

Even with careful preparation, however, there may come a time when going to your workplace full-time becomes difficult, and you would like to find ways to work that accommodate to your physical constraints. Management consultant Barbara Kivowitz, co-author of In Sickness As In Health, points out that physical pain, mobility problems, or reduced energy can interfere with your confidence in your ability to do a good job. “Even though it is hard to accept the reality of your body and its limitations,” says Barbara, “if you do so early enough, you can work with your manager to make changes in the way you work. Thanks to the Internet, many jobs can be performed remotely.” As a first step, Barbara advises making sure your supervisor appreciates the value of your contributions. “Then, you can initiate conversations where you ask for the help of your supervisor to figure out how you can continue to contribute to the workplace, while accommodating to your physical limitations.” While the Americans With Disabilities Act prohibits discrimination and ensures equal opportunity for persons with disabilities in employment, says Barbara, it is best to approach your employer as a partner, solving this problem together. After the changes are put in place, says Barbara, “It is then important to continue the conversation by checking in every few weeks or months, to make sure the system is still working for both you and the workplace.”

Adds Martin: “Feel gratitude about all you are able to accomplish.”

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Filed under Aging, chronic illness, Chronic Pain, Work life

Healing Hands: Physical Therapy for function, mobility, and comfort

I  have discovered a unique, highly effective form of physical therapy that combines the best elements of personal training with muscular therapy. Valerie Ruccia Eagan has developed her own brand of physical therapy that uses hands-on techniques, core- strengthening, and flexibility-building exercises, as well as mind-body energetic work. Her method cuts to the root of physical pain and mobility problems to provide deep and lasting healing.

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Filed under Aging, chronic illness, Chronic Pain, Healing, Marfan Syndrome

Pat Robertson is Dead Wrong

My OpEd in today’s Chicago Tribune:

A person with Alzheimer’s is not “kind of” dead. Not by a long shot. And televangelist Pat Robertson should know better than to speak flippantly from a position of authority on a matter that is complicated, nuanced and deeply personal. Continue reading

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Filed under Aging, chronic illness, mental health

She Didn’t Have to Die

A close relative died suddenly last fall. She was a 79-year-old woman who was active, vigorous and full of life. She sold fine jewelry in a large department store, spending all day on her feet presiding over her adoring customers. She was clever, a voracious reader and had a wicked sense of humor. She died in her beautifully decorated apartment surrounded by the books she loved, the artwork and sculpture she had collected on her travels, and the Continue reading

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Filed under Aging, chronic illness, Health

The Medical System Gave Up On Me

In 1995 I woke up from routine heart valve surgery with the left side of my body paralyzed from a stroke caused by the surgery itself: A tiny piece of tissue had broken away from the valve, traveled through blood vessels and lodged in my brain, blocking the flow of blood with its essential supply of oxygen to the neurons that controlled movement on my left side. I was 43 years old, married, with two young children.

If I had obediently followed the prescribed role of stroke patient in the world of conventional medicine, I would be an invalid in a wheelchair today. Instead, I am back at work as a medical journalist, paying taxes instead of collecting social security.

I recovered because “adapting” to my disability — which is what the insurance company doctor (who had never met me) told me to do after two months of occupational and physical therapy — was not an acceptable option for me. I didn’t want to buy shoes with Velcro, buttonhole fasteners or devices to hold a tomato steady so I could slice it. I didn’t want to walk with a cane or use a wheelchair in the airport. And I certainly didn’t want to spend valuable recovery time learning to use adaptive devices.

During my recovery, the health providers whom I found most helpful were those who recognized the devastation and despair that I felt as the result of this physical calamity. They saw me not just as a patient, but also as a wife, mother, writer and even amateur musician. In their understanding I found the encouragement, strength and hope that I needed to fight back to recovery.

The doctors I found least helpful were those who saw me not as a whole person, but rather as a “stroke patient:” These included the neurologists who shrugged and said “wait and see” when I told them that they must be wrong: I needed my left arm and I needed to be able to walk; and the heart surgeon who breezed into my hospital room just long enough to say, “Sorry you stroked, but heart-wise you’re fine.”

I quickly learned that while the advances of modern surgery can save your life, the conventional medical system — along with the insurers who pay for it — is not set up for full recovery.  The goal of the system was to get me out of the hospital or rehabilitation facility and send me home. What happened after that was up to me. The insurance company doctor (the one who never met me) told me that I had “plateaued,” which meant that while I had made progress in physical and occupational therapy, there would probably be no further improvement. I was at an impasse and additional intervention would be counterproductive (not to mention expensive).

As a patient, it feels as if the health insurers and many doctors want us to accept and “adapt” to our disabilities — whether we are recovering from a heart attack or stroke, suffering from chronic illness or pain or trying to manage the difficulties of growing older.  It is easier to prescribe pills and adaptive devices than to help us take responsibility for our bodies and our health.

I chose to fight my way back to recovery, and this is a tough thing to do for those of us who are accustomed to seeing our doctors as omniscient beings who control our health.  I learned about methods of healing outside of mainstream conventional medicine,including Traditional Chinese Medicine, chich has used acupuncture for thousands of years to treat stroke patients . Yoga, from the equally ancient Indian Ayurvedic system of medicine, gave me strength, balance and peace of mind. The Alexander Technique — a powerful system of movement education — taught me to use my body with less effort and reduced pain. Pilates exercise coaxed my weakened muscles back to work and craniosacral therapy restored my body’s natural rhythms.

I was fortunate: I had the will, the family support, the research skills and the financial means to pursue unconventional healing methods. Fighting the system is much harder for those who don’t have the money, the knowledge of alternative therapies or the emotional strength to keep up the lonely struggle for recovery.  Too often, such people live with pain, disability and despair.

Doctors must understand what illness means in the lives of their patients. They must use their positions, their authority and their words wisely. They have the power to heal, but they also have the potential to destroy hope and, along with it, the chance to recover.

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Filed under acupuncture, Alexander Technique, chronic illness, Chronic Pain, Doctors, Stories of Hope, stroke, Traditional Chinese Medicine